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Table 1 Summary characteristics of included studies

From: Routine use of patient-reported experience and outcome measures for children and young people: a scoping review

Characteristics

N = 172 (N, %)

Collection type

 Electronic

79 (46%)

 Mixed

8 (5%)

 Pen and paper

14 (8%)

 Telephone

2 (1%)

 Not applicable

13 (8%)

 Not stated

56 (33%)

Type

 PROMs

147 (85%)

 PREMs

11 (6%)

 PROMS and PREM

14 (8%)

Participant

 Patient

51 (30%)

 Proxy

12 (7%)

 Patient and proxy

45 (26%)

 Clinician

23 (13%)

 Clinician and proxy

10 (6%)

 Patient, proxy and clinician

17 (10%)

 Not stated/not clear

11 (6%)

Setting

 Outpatient

73 (42%)

 Inpatient

13 (8%)

 Mixture

6 (3%)

 Not stated

80 (47%)

Specialtiesa

 Oncology

17 (10%)

 Endocrinology

12 (7%)

 Mental health

11 (6%)

 Multipleb

11 (6%)

 Not stated

26 (15%)

 Other specialties

95 (55%)

Context

 Multicentre

34 (20%)

 Single centre

120 (70%)

 Registry network

5 (3%)

 Not stated

13 (8%)

Countryb,c

 United States

53 (31%)

 Netherlands

39 (23%)

 United Kingdom

26 (15%)

 Canada

14 (8%)

 Other

40 (23%)

 Not stated

6 (3%)

  1. aIndividual specialties reported only include studies with one speciality, ‘Multiple’ are studies reporting multiple specialties and ‘Not stated’ are studies that do not specify any specific specialties
  2. bSome studies reported the individual specialties included but others mentioned working across departments, centres or hospitals and did not indicate the specific specialties
  3. cOther’ countries are reported individually in the Additional File 4 which encompasses all countries including those of lower and middle income, yet these were noted to be underrepresented
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Systematic Reviews

ISSN: 2046-4053